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BioNJ’s Patient Advocacy Summit
December 13, 2018 @ 1:00 pm - 6:30 pm
EDUCATE. ENGAGE. EMPOWER.
Thursday, December 13, 2018
Celgene Corporation, 181 Passaic Ave, Summit, NJ
12:30 p.m.-5:00 p.m.: Educational Program
5:00 p.m.-6:30 p.m.: Legislative Holiday Reception
Register today and plan to attend BioNJ’s Third Annual Patient Advocacy Summit, taking place December 13, at Celgene, Summit, NJ. Bringing together Patients, Patient Advocacy Groups, Industry and Government for an afternoon of Education, Engagement and Empowerment, followed by a Holiday Reception with New Jersey Legislators.
A must attend program for anyone who advocates on behalf of Patients.
10 lucky attendees will receive an autographed copy of Michael Becker’s book, “A Walk With Purpose.”
|12:30 p.m.-1:00 p.m.||Registration and Networking|
|1:00 p.m.-1:15 p.m.||Welcome
Debbie Hart, President & CEO, BioNJ
Gregory Oakes, Corporate Vice President and General Manager, Celgene Corporation
|1:15 p.m.-2:10 p.m.||Educate: Harnessing the Power, Reach and Influence of Social Media
During this interactive session, we’ll take a deep dive on how to use social media to build your community, navigate the clinical trial process and move your cause forward.
Rebecca Kaplan, Public Affairs and Social Media Manager, Crohn’s & Colitis Foundation
MarlaJan Wexler, Patient and Award-Winning Blog Creator
Patricia Roselle, Global Head, Patient Network Management, Sanofi US
|2:10 p.m.-3:05 p.m.||Engage: Developing a Roadmap to Success
We’ll take a detailed look at Out-of-Pocket Costs — a current pro-patient, pro-access piece of legislation being reviewed at the State and Federal levels — as a case study that can be used as a guide to advancing your own legislative initiatives.
Assemblyman Daniel R. Benson
Tina Jacobs, Director of Community Health, Komen North Jersey
Jennifer McGarry, M.S., Regional Director, Advocacy, The Leukemia & Lymphoma Society
|3:05 p.m.-3:20 p.m.||Networking Break|
|3:20 p.m.-4:15 p.m.||Empower: The Journey to Finding a Cure – Lessons Learned
Hear from parents who turned their children’s diagnosis into a journey to finding hope and a cure.
Nicole Johnson, Founder, FOXG1 Research
Luke Rosen, Founder, KIF1A.org and Head of Patient Engagement, Ovid Therapeutics
Vincent Del Gaizo, Director, Strategic Partnerships & Patient Engagement, CARRA
Jayne Gershkowitz, Chief Patient Advocate, Amicus Therapeutics
|4:15 p.m.-4:45 p.m.||Keynote: Medical Innovation: The Promise for a Brighter Future
Michael Becker, Patient, Patient Advocate and Biotech Entrepreneur
During our closing Keynote, Michael Becker will discuss his personal journey which spans over 20 years in the biopharma industry to being diagnosed with advanced (Stage IV) oropharyngeal cancer. Michael will tie the day’s discussion together by sharing valuable insight on how to advocate for yourself and your Patient community while working with industry, healthcare institutions and government to ensure future medical innovation.
|4:45 p.m.-5:00 p.m.||Closing Remarks|
|5:00 p.m.-6:30 p.m.||Legislative Reception
Enjoy this unique opportunity to network with New Jersey legislators while connecting with fellow Patient advocates.
Attendance is open and free to Patient advocacy groups and BioNJ Member R&D (Innovation) company Patient advocacy and government affairs professionals. Registration is $75 for non-BioNJ member R&D (Innovation) company Patient advocacy and government affairs professionals. Advance registration required. Space is limited and is on a first-come, first-served basis.
PLUS, BioNJ is excited to offer your Patient advocacy organization a complimentary Membership. You’ll enjoy all that BioNJ has to offer, including engagement with the New Jersey life sciences ecosystem, networking opportunities, public policy and related advocacy, educational workshops and Member pricing on all of the above. Click here to download an application.