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BioNJ’s Patient Advocacy Summit 2022

December 13

EDUCATE. ENGAGE. EMPOWER.
A must attend virtual program for anyone who advocates on behalf of Patients!

Attendance is open and free exclusively to ALL Patient Advocacy Groups and R&D company Patient advocacy and government affairs professionals. 

Register Today!. Become a Sponsor

Tuesday, December 13, 2022 | 8:30 a.m.-1:00 p.m

Bristol Myers Squibb, Lawrenceville, NJ*

Because Patients Can’t Wait®, BioNJ is thrilled to host our Seventh Annual Patient Advocacy Summit, on Tuesday, December 13. Back in person after two years, the Summit will bring together Patients, Patient Advocacy Groups, Caregivers, Clinicians and R&D Professionals  for a morning of Education, Engagement and Empowerment. Attendees will gain valuable tools and insights, share best practices and meet key stakeholders within the health care ecosystem.

Please share with fellow advocatesAttendance is open and free exclusively to ALL Patient Advocacy Groups and R&D company Patient advocacy and government affairs professionals.

8:30 a.m. – 9:00 a.m.
Registration & Networking Breakfast
9:00 a.m. – 9:15 a.m.
Opening Remarks by BioNJ & Bristol Myers Squibb
9:15 a.m. – 10:05 a.m.
EDUCATE: Ensuring Diversity in Clinical Trials: From Conversation to Implementation

It’s imperative that clinical research represents a fully diverse population – inclusive of different races, ethnicities, ages, sex and preexisting conditions. Health Equity in Clinical Trials is the precursor to ensuring that all Patients can have access to therapies and cures that will work for them. During this intimate discussion, our panel of experts will share real-life examples of how we can work together to help build trust and engage populations that have been historically “underengaged” to strengthen diversity in clinical trials and expand health equity.

Panelists:
  • Tinamarie Duff, Global Lead, Disability Advancement Workplace Network, Bristol Myers Squibb
  • Elizabeth Barksdale, Ph.D., Director, Regulatory Affairs & Scientific Policy, LUNGevity Foundation
  • Amesika Nyaku, M.D., M.S., Assistant Professor, Department of Medicine, Division of Infectious Disease, Rutgers New Jersey Medical School
  • Sunanda Gaur, M.D., Director, Clinical Trials, Professor, Department of Pediatrics, Rutgers Robert Wood Johnson Medical School
Moderator:
  • Martina Flammer, M.D., Chief Medical Officer, Insmed
10:05 a.m. – 10:55 a.m.
ENGAGE: The Impact of Pharmacy Benefit Manager (PBM) Practices on Patients
Click here for an educational infographic on PBMs.
America’s thriving life sciences industry has enabled new and innovative drugs to come to market, promising a better quality of life for people in New Jersey and around the world. However, PBM practices have proven to drive up treatment costs causing Patients to leave the pharmacy counter without the medicines they came to get – worsening their quality of life and threatening their health outcomes. Learn who these middlemen behind high prescription drug pricing really are and how they are controlling what medicines Patients receive and how much they pay.
Panelists:
  • Andrew G. Kaufman, M.D., Anesthesiology & Pain Management, Rutgers New Jersey Medical School
  • Alyssa Lovill, Executive Director, Epilepsy Foundation
  • Brian Oliveira, PharmD, Executive Director, Garden State Pharmacy Owners
Moderator:
    • Molly Williams, Director, Alliance Development, Pfizer
10:55 a.m. – 11:15 a.m.
Networking Break
11:15 a.m.-12:00 p.m.
EMPOWER: A Mother’s Quest for Meaning and Miracles
Maria J. Kefalas, Founder of The Calliope Joy Foundation and author of “Harnessing Grief: A Mother’s Quest for Meaning and Miracles,” will share her inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others. When Maria Kefalas’s daughter Calliope was diagnosed with a degenerative, incurable genetic disease, the last thing Maria expected to discover in herself was a superpower. This superpower of grief manifested in the realization that in order for Maria and her family to save themselves, they would need to find a way to save others. So, they set out to raise money so that they, in their son PJ’s words, could “find a cure for Cal’s disease.
12:00 p.m. – 1:00 p.m.
Networking Lunch

A must attend program for anyone who advocates on behalf of Patients! Please share with fellow advocates. Attendance is open and free to ALL Patient Advocacy Groups and R&D company Patient advocacy and government affairs professionals.** Register now. Reach out to CHennessy@BioNJ.org to learn about Sponsorship Opportunities.

 

Note: If you are unable to attend in person, and are interested in watching a streamed version of the event (without the ability to interact with others), please contact Randi Bromberg at RBromberg@BioNJ.org.

 

 

Contact Cheri Hennessy at CHennessy@BioNJ.org to learn about Sponsorship opportunities. Call (609) 890-3185 with any questions.

*All registrants must be up-to-date on COVID-19 vaccinations as defined by the CDC in order to attend BioNJ’s Patient Advocacy Summit. If the community level of COVID-19 remains low or medium, masks will not be required to be worn, but anyone is welcome to wear a mask based on personal preference. However, if transmission is at a high level, everyone will be required to wear a mask except when eating or drinking. BioNJ will update these protocols, as appropriate, subject to any new CDC guidance or requirements by the venue, in compliance with local/state/federal guidance and we will announce any policy changes in advance of event.

Details

Date:
December 13
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