Ensuring Diversity in Clinical Trials
- National Minority Quality Forum
- The Pfizer Corporate Affairs Multicultural Health Equity Collective: a Catalyst for Change
- Clinical Trials: The Power of Participation
- Article: “Addressing Demographic Disparities in Clinical Trials”
- Diversity and Inclusion in Clinical Trials
- 6 Practical Ways to Increase Diversity in Clinical Trials
- Article: “Biopharmas Must Address the Reality of Racial Disparities in Health Outcomes Exposed by COVID-19”
- Article: “Recognition of Research Participants’ Need for Autonomy: Remembering the Legacy of Henrietta Lacks”
- Op-ed: “We Need to Recruit More Black Americans in Vaccine Trials”
- Clinical Trials Education Center
- Clinicaltrials.gov
- Researchmatch.org
- Centerwatch.com
- Research and Reports on Minority Participation in Clinical Trials and MS in Minority Communities
- MS Minority Research Engagement Toolkit
- FDA Minorities in Clinical Trials Fact Sheet
- FDA Minority Health Resources
- Racial and Ethnic Minorities in Clinical Trials
- Minority Health and Health Equity
The Power of Diversity within a Patient Advocacy Organization
- Articles:
- Tools to Identify Gender Bias:
- Textio: https://textio.com/
- Gender Decoder: https://gender-decoder.katmatfield.com/
- Diverse Job Boards:
- Hire Autism
- Black Career Network
- Diversity Working
- Recruit Disability
- Pink Jobs (highly skilled LGBTQ candidates)
- We Work Remotely
- Career Contessa (ambitious and highly engaged female talent)
- Female Executive Search (C-Suite female candidates)
- 70 Million Jobs (candidates with criminal records)
- Hire Purpose (military spouses, veterans and service members)
- Recruitment Software:
- Training
Who Is Advocating for the Advocates?
Keynote: “Dreams: My Journey with Multiple Sclerosis”
- “The Show Must Go On” by Kristie Salerno Kent
Patient/Caregiver Stories
- “Insightful Moments” Educational Series
- “Giving Thanks for the Gift of Time” blog
- The Tubesings: Family & Hope
- Gavin and Nicole: One Bottle of Hope for One Amazing Kid
- Pete and Lisa: Hope & Heroes
From Bench to Bedside and Beyond
- Searching for Answers: Contacting Biopharmaceutical Companies Effectively
- RARE Drug Development 2020 Report
- Building Successful Collaborations Between Advocates and Researchers
- Mapping Patient Inclusion in Drug Development
- Social Media for Patient Advocacy
- Patient Advocacy: Ten Tips to Develop a Stronger Social Media Presence
- How to Promote Your Rare Disease Story Through Social Media
- Using Storytelling To Raise Awareness For Your Rare Disease
- Patient Advocacy: An Emerging Role Within Pharma and Biotechnology
